Curated, trustworthy links for patients, families, and clinicians — a starting point for learning, support, and connection.
Heritable connective-tissue conditions affecting skin, joints, and vessels — often with oral and craniofacial features dentistry can help recognize.
An ANKRD11-related condition known for macrodontia (large upper teeth), distinctive facial features, and developmental differences.
Nonprofit support, education, and a natural-history study.
Visit ↗ FoundationFamily support and global community connection.
Visit ↗ InfoSymptoms, causes, and care overview.
Visit ↗ InfoClinician-reviewed summary of KBG syndrome.
Visit ↗Cleft lip and palate, craniosynostosis, Treacher Collins, and other differences of the face and skull.
Canada's charity for people with facial differences and their families.
Visit ↗ FoundationCanadian charity supporting comprehensive cleft & craniofacial care.
Visit ↗ FoundationFamily support, retreats, and education.
Visit ↗ FoundationSupport and resources for craniofacial differences.
Visit ↗Loeys-Dietz, Marfan, and related conditions that frequently involve craniofacial and dental features.
Trusted starting points for any rare condition — advocacy, navigation, and reliable information.
Canadian Organization for Rare Disorders — national advocacy.
Visit ↗ FoundationUS National Organization for Rare Disorders.
Visit ↗ FoundationEducation and connection for the rare-disease community.
Visit ↗ InfoReliable, clinician-reviewed condition summaries.
Visit ↗These links are shared for general information and support and are not a substitute for professional medical advice. Always consult a qualified healthcare provider about your individual situation.